WELL HELLO AND THANK YOU FOR FOLLOWING US ON THIS HORRENDOUS JOURNEY!
Evie is almost 6 now and we still haven got anywhere from 2 years ago , still waiting for a referral to London its been such a struggle, Christmas day 2013 we spent in hospital as Evie has severe breathing problems due to her little stomach filling with air , after that came lots of vomiting on a daily basis so mummy decided (after a lot of thought and research) to stop all Evies medication! what a transformation in the little girl , Evie can now count to five say her name ,age,and where she lives , everyday this little girl amazes me that is where my strength comes from.from. Evie still can not walk bum shuffles everywhere and into absolutely i everything and we love it ha! we are trying to raise money to get Evie to a metabolic clinic ourselves but sadly with the lack of knowledge and understanding to mitochondrial disease there is very little support, we just want to thank everyone who have helped us on this journey xxx.
Evie is almost 6 now and we still haven got anywhere from 2 years ago , still waiting for a referral to London its been such a struggle, Christmas day 2013 we spent in hospital as Evie has severe breathing problems due to her little stomach filling with air , after that came lots of vomiting on a daily basis so mummy decided (after a lot of thought and research) to stop all Evies medication! what a transformation in the little girl , Evie can now count to five say her name ,age,and where she lives , everyday this little girl amazes me that is where my strength comes from.from. Evie still can not walk bum shuffles everywhere and into absolutely i everything and we love it ha! we are trying to raise money to get Evie to a metabolic clinic ourselves but sadly with the lack of knowledge and understanding to mitochondrial disease there is very little support, we just want to thank everyone who have helped us on this journey xxx.