Well still no peg for miss Evie as we are currently waiting for a referal to Queens square hospital in London (been waiting since october last year) Evie has been given a walking frame that she loves! walked to the shop last week her little face was priceless.... We finally have a new home adapted for Evie and its lush :) I have decided to home school Evie as the health risks for school are too high, and i want her here as long as possible it was one hell of a battle but we done it! i would move heaven and earth to keep my baby safe. We are lucky to have amazing people in our lives and wouldn't change a thing :) A huge thank you and loads of love to my mum who is here day and night through it all every seizure, tube change the works ...as soon as we know more we will update :) thank you people lots of love from Evie and family. xxxx
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post made;
February 2016
July 2014
July 2013